Concerns with Patient Reported Outcome Measurement and Value Claims: The Case of Mavacamten and Symptomatic Hypertrophic Cardiomyopathy (SHCM): 

Paul C. Langley, Ph.D., Adjunct Professor, College of Pharmacy, University of Minnesota, Minneapolis, MN

The Maimon Working Papers are free to download (in PDF format) at the bottom of the page.